About Project528

Yoko – Diagnosed at age 36
What is Project 528?
Project 528, named for the estimated 528,018 young adults impacted by breast cancer worldwide, represents a groundbreaking global needs assessment of young adults affected by breast cancer. Project 528 is a comprehensive survey that asked about all aspects of a young breast cancer experience including questions about: diagnosis, treatment, psychological impact, financial and employment impact, body image and sexuality, fertility, and patient empowerment and advocacy. This collaborative effort aims to address the critical gap in understanding the unique challenges faced by young breast cancer survivors across diverse geographic and cultural contexts.
What is the goal of Project 528?
Our goal is to listen and learn from the experience of the young breast cancer community around the world. The results will be analyzed and presented in a multi-part report series that partner organizations, patient advocates, and clinicians can share with government policymakers, healthcare providers and others who influence our care. Together, we aim to co-create shared solutions that improve the lives of young adults affected by breast cancer worldwide.

Jess – Diagnosed at age 27

Kelly – Diagnosed at age 32
Why is Project 528 important?
We are a global community. Whether in Paris or Cairo, young adults with breast cancer share many common challenges. Project 528 is the first-ever global effort to identify the most pressing needs of this community and share them across languages and continents to improve the quality of care for all.
How did Project 528 start?
During ESO-ESMO 4th International Consensus Guidelines for Breast Cancer in Young Women (BCY4), patient advocates recommended that a global comprehensive needs assessment be conducted to help set patient priorities. Europa Donna – Slovenia and Young Survival Coalition (YSC) partnered to recruit other global breast cancer organizations and begin this work.

Anna – Diagnosed at age 37

Natalie – Diagnosed at age 34
Read the report and share it with your network.